One of the Good Ones
I'm not a person who believes in chances and luck. I think that there are no accidents. I believe that people are put in our lives to make us who we are and show us who we were meant to be. Call me...
View ArticleSacrificial Lamb
To the person at Medicaid reviewing my son's Speech/Feeding appeal:I can see it now. There are likely dozens upon dozens of appeals in your queue. You're crunched for time, for personnel, and - most...
View ArticleSpecial to Me
Today will soon be overTomorrow will arriveRight now, I want to hold youUntil you close your eyesWords can't always sum upThe feelings that I feelSo peaceful when you're sleepingI know you'll hear me...
View ArticleFear and Feeding in Elementary School
So, I have a slight confession for you all. I'm scared. I'm really scared, as in only-a-four-letter-word-will-do scared. Yep, that scared. Feeding scared.It seems like we're approaching the perfect...
View ArticleYour Song
And you can tell everybodyThis is your songIt may be quite simple butNow that it's doneI hope you don't mindI hope you don't mindThat I put down in wordsHow wonderful life isWhile you're in the world.-...
View ArticleThe Person You "Forgot" in Your Medicaid Rant
Author's Note: This post has been brewing in my Drafts folder for some time. I wrote this post and engaged in this debate the day before I learned Maggie had passed away and - therefore - it remained...
View ArticleI Am Beautiful
As I do so many days, I stared in the mirror at myself before I got in the shower. The distain on my face is surely observable as I survey the person standing before me. If my husband is unlucky...
View ArticleTen Things I've Learned By Having a Child with a Feeding Disorder
We've lived in the feeding trenches since day one. There have been few things in my life that have caused me more fear and anxiety than Jack's feeding challenges.I remember how - after Jack was born...
View ArticleUnrealistic Expectations and Behavior Issues
It's a funny position to be in. To sit here trying to convince someone to go easier on your child - that their expectations of his capabilities are too great - all the while being made to feel like...
View ArticleI Have a Dream
I say to you today, my friends, so even though we face the difficulties of today and tomorrow, I still have a dream. It is a dream deeply rooted in the American dream.I have a dream that one day this...
View ArticleThe Causes of My Son's Autism
I swear, it seems like we hear every day of a newly suspected factor that might or might not contribute to the development of autism. Normally, I hear these things in passing and move on. Honestly,...
View ArticleNot Going for "Indistinguishable"
We're all a little different. We each walk through life, a tapestry of individualities, merging together to make one imperfect whole. And so it is that when we talk about acceptance we really are not...
View ArticleThe Breaking Point
A year or so ago, I - like so many others in the Atlanta area - began watching the trial of Hemy Neuman, a man who was eventually convicted of killing the husband of a woman he was in love with as he...
View ArticleNot Invincible
Author's Note: I have held on to this post for several weeks because it mentions our lost little love and - well - I couldn't quite revisit that nightmare at the moment.However, hearing that a fellow...
View ArticleOn Preventing Crimes Against Autistics - An Open Letter to Autistic and Ally...
Author's note: I am fully aware that I may be opening myself up to criticism from a great many. I may be stirring the pot. However, I believe so strongly in this - that it's time we set aside the petty...
View ArticleThe Space Between
When there are two sides, there is always someone who falls in the middle. Take divorce. If your parents get divorced, its easy to feel stuck in the space between your parents' anger towards each...
View ArticleYes, It Has Everything to Do with Autism: On Misinterpreting Behavior
That behavior - getting upset like that - is just so much like a typical child!He could tell us what he's thinking if he wanted to; he's just being manipulative.He just doesn't want to listen.He's...
View ArticleFear and Misconceptions (and a Haircut)
Intolerance and misunderstanding. It comes in many forms. I think that - as a whole - we have been incredibly lucky that the overwhelming majority of people that we encounter with Jack have been...
View ArticleThis is Not Our Autism
Yet we’ve for the most part lost touch with three million American children, and as a nation we’ve done nothing.We’ve let families split up, go broke and struggle through their days and years.No more....
View ArticleThis is Autism...Through Jack's Eyes
Author's note: Today brings forth an initiative from the autistic and ally community to show the world just whatautism is in light of Suzanne Wright's controversial op-ed piece in which she repeatedly...
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